Thursday, August 8, 2013

First it was PMS......now, it is PMR

I finally know why I have not been feeling up to par for a long time.  I have been meaning to address it here on my blog, and today just seemed like the right day.

After many months of doctor appointments, numerous blood tests, answering lots of questions from my doctor, and dealing with Prednisone and its numerous side effects, the diagnosis is officially in:  polymyalgia rheumatica (PMR).



*Google*

PMR is an inflammatory disorder of unknown origin that causes muscle pain and stiffness.  This pain and stiffness often occur in the shoulders, neck, upper arms and hips.  (I have it in all these places).  


*Google*
Other symptoms are fatigue (what I find the hardest to deal with), a general feeling of not being well (this was the feeling that sent me in search of the right doctor), and depression.  I also read that "unintended" weight loss is a symptom.  Of course, being me, this is the ONLY symptom I have yet to experience.  (sigh)

I do notice a loss of interest in things that I enjoyed previously, including blogging.  But I refuse to give in and be defined by this.  I did have a lot of negative side effects from Prednisone, so my rheumatologist has me starting another form of it that is better tolerated.  I am trying to avoid foods that cause inflammation, such as animal protein, except for fish and lean poultry, and processed foods.  I don't really eat fast foods, but I do like my Boar's Head ham and a hot dog once in a while. Ah-ah, no can do.

The good news is that they ruled out lupus, and most likely I do not have fibromylagia.  

What I learned is that you should keep on asking questions and bringing things to the table when  you go for regular medical exams.  I had been complaining to my medical doctor for the longest time, and his response was always "menopause", lose some weight, or "typical for a woman your age".   I am glad I went to see a specialist.



xo



30 comments:

  1. I'm glad you finally got a good doctor and diagnosis for your ailment Barbara! Hope the new medicine helps you feel better!

    ReplyDelete
  2. Barbara - Glad you got a diagnosis - at least you know what it is. Sometimes we just have to keep hammering away at the doctor. We are very fortunate with ours - he always says "no one knows your body like you do" and listens very patiently.

    Hope the new meds help.

    Thinking of you.

    Blesssings and prayers to you.

    Judy

    ReplyDelete
  3. Good that you know just what you are dealing with and hopefully learn just what works for you. Take care, friend!

    ReplyDelete
  4. Always good to know what you're dealing with, I hope you find some relief Barbara! Take care:@)

    ReplyDelete
  5. Dearest Barbara,

    I am so glad that you have found the cause of your pain. For sure now more easier to prevent the problems.
    take a good care
    my best wishes for your health.
    hugs to you

    ReplyDelete
  6. Was your scalp tender? I have heard that that is also one of the symptoms and that it can affect eyesight. Is it also true that it has a limited duration and you should recover completely? For some crazy reason both my father and my grandmother had this during the same period of time so whenever I start feeling tired and achy, I look for those other symptoms. Glad that you did not give up and that you went to a specialist. Also glad that you are doing better on the different medication. I guess we have to keep squeaking until we get the help needed.

    ReplyDelete
  7. So sorry to hear that you have been going through this, Barbara. However, it is good that you have finally gotten an answer to why you haven't felt well and can now move forward.
    The more I hear the more it seems like we all would be better off to eat anti inflammatory foods.
    I hope you start to feel better soon.
    Hugs to you.

    ReplyDelete
  8. I am sorry for what you are going thru, Barbara, but glad that you finally know what you are dealing with. Oh my, I can eat the house down when I take prednisone, or get a shot of it. Keep us posted, and hope your feeling well enough to come back to blogland soon.

    ReplyDelete
  9. It must be a relief to know now what was causing your problems. I haven't heard of this before. Hopefully there will be a plan that works best for you. xo

    ReplyDelete
  10. I hate it when a Dr blames it on menopause instead of dealing with the problems. So glad you got a diagnosis! Take care of yourself and I hope your interest in things come back!!
    hugs,
    Linda

    ReplyDelete
  11. I thought you had been sort of quiet around here. I'm so glad you stuck w/ your gut & followed through. We have to be our own advocates these days, for sure! Praying that the new meds will be helpful, and that you'll be feeling back to your old self soon, my friend! xo ~Sally

    ReplyDelete
  12. Barbara, I hope now that you have a diagnosis that this can be better medically treated. Can it ever go away completely? I totally agree with you on doctor's playing guessing games. I have found that the internet is a great tool for finding a physician to your liking...you can learn everything from their education to credentials to philosophy. I found my female doctor who works in a women's clinic and I have never been happier. Somehow I feel she is more in tune with my complaints and feeling than a male would be. In any event, I wish you all the best.

    XO,
    Jane

    ReplyDelete
  13. Barbara, I'm thankful you're finally getting some answers. Hopefully now you'll be able to get some relief...

    ReplyDelete
  14. Barbara, I am so sorry to hear you've been struggling so! I will be praying for you, that the medicine will be effective, the side effects will be minimal, and you are soon feeling yourself! {{hugs}}

    ReplyDelete
  15. Good for you to keeping asking, and seeing a specialist. We are in charge of our own bodies! Now that you know what you're dealing with, I hope you will feel better soon. xo

    ReplyDelete
  16. Good for you about pursuing what was ailing you. So many people go around misdiagnosed and stop at the first doctor. I have a fiend who did this and a year later she was properly diagnosed with a very serious problem. I'm sorry to hear you've got this ailment but at least you can make sense of how you're feeling. Prednisone can cause weight gain so hopefully your new medication will work well. I hope you'll feel better and keep involved with blogging. Hugs, Liz

    ReplyDelete
  17. I'm so glad that you finally got to the bottom of what was bothering you, Barbara. I remember you talking about it at the Southern Bloggers Conference last October. And I hope that the medication(s) they prescribe for you are well tolerated and give you much relief. xo's

    ReplyDelete
  18. Barbara, I had no idea! I am so sorry that you have to deal with this, but happy that you finally have a diagnosis. It is hard to get better, when you do not even know what is wrong. I hope that things will be some better now and that you are on the road to recovery!!

    ReplyDelete
  19. Oh my, Barbara! I am so sorry that you have been having to endure all of these symptoms. This is heart wrenching. So glad that you finally have a diagnosis. I knew something was going on and we missed your sweet posts. I am thankful that you did not give up. I can't tell you haw many times Bob and I have heard
    "That comes with the aging process". I finally started telling them that, "I wouldn't know, I've never been this old before".
    Take care of yourself my friend. xoGinger

    ReplyDelete
  20. Barbara, I'm so glad that you have a correct diagnosis now, and I hope the new medications give you some relief. There is nothing more depressing than knowing that you don't feel well and no one telling you how to fix it! I love Ginger's line above-"I wouldn't know, I've never been this old before." See, you have to keep blogging because you'd miss jewels like that!"

    ReplyDelete
  21. I'm so glad you have pursued and gained more information and a diagnosis. We know our own bodies and we have that sixth sense when things are "off". I applaud you! I so hope this medication works and you feel much better. Believe me, I know how any form of depression can adversely affect us.

    Hang in there my friend!

    xo
    Pat

    ReplyDelete
  22. Hi Barbara, I'm sorry to hear you've been through such a difficult time but it's certainly good that you've had a diagnosis.

    My aunt has the same thing and she was given a diet of mainly whole foods to eat. If you would like the list, I'd be happy to forward it to you because it's made a world of difference for her. She's also found good substitutes for a lot of foods that she can no longer have.

    Good luck with it, friend. You strike me as a tough cookie so I know you'll conquer this.

    ReplyDelete
  23. Wising you only the best and keeping you in prayer's.

    ReplyDelete
  24. I'm sorry you haven't been feeling well, but glad you have a diagnosis. Now you can treat it properly. I hope you get to feeling better soon and keep blogging. We would miss you if you didn't. :)

    ReplyDelete
  25. I hope you feel better very soon, Barbara. I said a prayer for you tonight.
    Blessings, Beth

    ReplyDelete
  26. Dearest Barbara,
    Oh My, how hard it must have been until you have a diagnosis. My late mother had rheumatism and I had seen her in pain a bit.
    Actually, I have had restless-leg, which requires me to have a medicine before go to bed. Without it I won't have a sound sleep. I remember the feeling of great relief to find the answer.
    Take care of yourselves, my dear friend. So Sorry for my belated comment and I'll visit again when I find time for your newer post. Night Night from Japan.
    Lots of Love and hugs, xoxo Miyako*

    ReplyDelete
  27. Barbara, I'm so sorry you've had to deal with all this. I knew you had taken some time away from blogging; I'm really glad you're not giving it up though. We would miss you!

    Chronic pain is a hard thing to live with; it has a way of wearing one down (physically and mentally). It seems like so many people deal with chronic pain in one form or another. I understand about the prednisone; my sister has had to take it before, and it really did not agree with her. I'm glad your doctor has found something else for you to use; I hope you'll be able to tolerate it better.

    I'm glad you felt like you could share with us. I'm really glad you don't have lupas, and I think it's probably a relief to you to finally have an answer to what's been going on. Good luck with you new medication, and please keep us updated!

    Hugs to you,

    Denise at Forest Manor

    ReplyDelete
  28. So sorry to hear you have this, dear. It sounds a bit like arthritis, which my mother had.

    Take care of yourself. You are special to us.

    Love,
    ~Sheri

    ReplyDelete
  29. I know that we've talked about this before and it does make you feel a little better knowing what it is. I know it's hard to deal with, but every day is a new day.

    xo

    ReplyDelete
  30. I must give you some peace of mind knowing finally what has been causing your symptoms. I hope you find a way to deal with the fatigue and the pain!

    ReplyDelete

Related Posts Plugin for WordPress, Blogger...